Saturday.  A day to sleep in finally.  I was fooled though - I woke up at 7:20ish to my parent ear alerting me to Seizure sounds.  I ran into the other room to be sure that Humanling wasn't hanging off the bed - she is in a loft bed that was a gift to her and once was half hanging off during a seizure.  She wasn't.  But I usually take the blankets off her and make sure that she can't get twisted up in anything.  I don't know how other parents handle seizures, but I talk to my girl during.  I tell her it's going to be ok.  I tell her that I'm there, that I love her.  I stroke her hair, her legs, her arms and try to be comforting.  Maybe it is comforting to me more than it would be for her.  But I follow the rule of not knowing what the subconscious hears, so better to err on the side of positive statements.  I try to keep the "Jesus Christs!" under control.  


When the seizure was winding down, I noticed her thumb stuck in the collar of her shirt.  I hoped that she hadn't sprained it or anything.  I have a great respect for the strength of the body during a seizure.  It didn't appear swollen.  I usually re-position her body afterwards as well.  Make sure her spine isn't twisted, her neck looks like it's in a comfortable position, her arms in a natural position.  I had a guest on my show once (Scorpion Equinox) who cured her own epilepsy.  She had told me that the neck needs to be massaged because it holds a great amount of stress and tension there from seizures.  That made perfect sense to me.  Sometimes I actually remember to do this for her.  


When she got up awhile later and came into where I was, I let her know that she had a seizure, which is what I normally do.  She said that she already knew.  I asked how, because I'm always curious to know what the answer will be.  Sometimes the sore tongue is a dead giveaway.  Today it had nothing to do with her tongue.  She said she felt it.  I asked her further how did she feel it - what did it feel like?  It's rare that she is conscious enough to feel it.  She said she felt the shaking.  Did it hurt?  No, it didn't hurt.  


Well thank God for small favors.  It doesn't hurt.  Unless she bites her tongue of course....then later on she has a hard time with eating for a day or so.  


For the rest of the day she acts normal.  Although on a school day, when we're trying to get ready to get out of the house early and she has a seizure, she seems to be in a bad mood.  


I find that immediately I start analyzing the day before.  Did she have dyes?  Too much sugar?  Not enough water?  Too much activity? Excitement?  Gluten? What happened?  How can I actually even know?  


But I bet if she had been sleeping with me, it may not have happened.


Epilepsy in this house involves a lot of woulda, coulda, shoulda moments.  Although none of the projected scenarios can be founded.  


The rest of her day was fairly normal.  She played a song for me on her keyboard that I had no idea that she even knew how to play....without the sheet music.  She even dressed up in concert type clothing.  She finished her dinner before me tonight, ran to get dressed and played Christmas songs for me on the keyboard as I slowly, extra slowly, finished my dinner,.  


At some point during the day she showed me how she could even play music with her toes.  


But she went to bed on her own, as she usually does.  She tries to stay up slightly later than usual but is one of those children that is affected by time.  Her body tells her that she can't stay up any later and against what she really wants to do, she has to give in.  


I am grateful that although she has epilepsy, she doesn't at this time, have it any worse.