Whoops

Sometimes it is simply amazing how that kid's mind works.  There are times where she is excited to get up and go to school and on those days, there isn't a problem in sight with a seizure.  She's waking the birds up on those mornings.  That was today.  Yearbooks were to be given out.  


The road to hell is paved with good intentions...and I bought a brick with my name engraved in it.  Last night, for all my writing of being careful waking her up and timing and circadian rhythms, planetary farts and feather dipping, I committed one of the major Boo Boo's in the epileptic rulebook for my Humanling.  She had been awake about 20 minutes prior asking if she could come out and sleep with me.  I told her that the rule is if the light is on, then no.  It means I'm staying up longer (probably playing Farmville and babysitting all my blogs) and that she can come out later.  So I decided to save her the wait and went in awhile later.  Remember last night's blog in which I stated that no matter how asleep she was, the magic words that promise sleeping next to mom wakes her up Just Like That?


She didn't wake up Just Like That. At first.  I asked again and she suddenly jerked open her eyes and screamed bloody murder.  (No chizz this time.  Just bloody. Murder.).  


With a consciousness entrance like that I knew we'd be stuck not lying down for a bit.  And so it went.  I walked her back and forth for nearly 10 minutes to try and stop the jerks that had started.  Eventually she got all angry at me because she wanted to lie down but I knew if she did, she would fall into a full fledged seizure.  The longer I can keep her on her feet, the better.  Finally she indignantly laid down.  And thankfully we'd been up long enough because there were a couple of minor twitches and then she twirled her hair through her fingers and fell asleep.


Those are the moments  I realize that most parents can take for granted their kid just going back to sleep.  Not so with my child.  She has to be monitored until her body can calm down.  


Tonight however, I will NOT be prematurely extending any offer to come out and sleep next to me.  If she wakes herself up while talking in her sleep, there will be a spot waiting for her.